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Privacy Policy

The Parkinson's Disease Foundation (PDF) welcomes your visit to our website, www.pdf.org. We hope that you have found the information you were seeking. We invite you to use the website to "Ask the Expert" any question about Parkinson's that is on your mind, to order educational materials, or to make a donation.

PDF is committed to protecting your privacy. This statement explains our online information practices and the choices you can make about the way any information you provide us is collected and used. For easy and direct access, we provide a link to this statement from our home page and all other pages of the site.

PDF is the sole owner of and the only organization that uses the information collected on this site. We will not sell, share, or rent this information to others under any circumstances.


A cookie is a small data file that a website may send to your browser and which may then be stored on your hard drive. Cookies allow us to customize the information we provide according to your profile and preferences. Widely used on the Internet, cookies have become an industry standard. Our website uses cookies to simulate a continuous connection -cookies let us "remember" information about your preferences and session, and allow you to move within areas of our website without reintroducing yourself. No personally identifiable information is stored in these cookies.

Although a cookie cannot, in and of itself, identify you, it can identify your computer. Your browser is most likely set up to accept cookies automatically. If you'd like to disable cookies, you may do so by adjusting the options or preferences in your browser. However, by doing so, you may lose some of the functionality of our website.

IP Addresses

An IP address is a number that is automatically assigned to your computer whenever you begin service with an Internet Service Provider. We may collect IP addresses for the purposes of system administration and to audit the use of our website. Each time you log onto our website and each time you request one of our pages, our server logs your IP address. Although we log your session with us, we will not normally link your IP address to anything that can enable us to identify you.

Use of Your Personal Information

You may request copies of printed or other materials of interest that we offer, or you may request an answer through the service "Ask the Expert." In order to receive these materials or your answer, you will be asked to furnish your name, address, email address, and telephone number, and you may be asked to state whether you are a patient, family member of a patient, or a physician, and how you learned of PDF. Such information may be collected and used to assess the effectiveness of the "Ask the Expert" service, but your name and address will not be disclosed to any other organization.

Online Donations

PDF collects the following information through our secure online financial-transaction pages: name, address, e-mail address, phone number, and credit card information. This personally identifiable information is used to acknowledge receipt of your donation for tax purposes and to include you on our mailing list if you choose to join it.

When you send a donation in honor of or in memory of someone and request that an acknowledgement be sent to another individual or a family, we will use the name and address of that individual or family for acknowledgement purposes only.

Mailing List

PDF provides a separate online form to enable you to join our mailing list. The information we collect includes: name, address, e-mail address, and phone number. This information is securely stored internally and accessed only when we correspond with our mailing list periodically during the year, either via e-mail or regular mail.

Please contact us directly by regular mail if at any time you wish to be removed from the mailing list or if you would like to correct or change the personal information you have previously provided. To protect your privacy and security, we will take certain steps to verify your identity before granting access to your information or making corrections. Callers will be asked specific questions, including full name, address, phone number, and, if applicable, credit card numbers and/or expiration date, in order to verify their identity and protect the privacy of PDF's donors and members of its mailing list.

Links to Other Websites

PDF's site includes links, some temporary and some permanent, to other websites. We are not responsible for the privacy and security practices of any other website or the nature of the website's content.

Children's Privacy

Neither the PDF website nor any of its content or services is or are designed or intended to attract children under the age of 13. We will not knowingly collect personal information from children under 13 unless we receive their parent's written consent or we are otherwise permitted by law.


Our operations and maintenance contractors may have access to your personal information in the course of maintaining our website or providing it or its end users with products or services. These contractors include the organizations that provide us with technology and with services and/or content related to better operation and maintenance of our website. In particular, these contractors may have access to your email or your mailing address if you have provided that to us for the purpose of receiving materials so that they may send materials to you on our behalf pursuant to this Privacy Policy. Access to your personal information by these contractors is limited to the information reasonably necessary for the contractor to perform its limited function for us. We also require that our operations and maintenance contractors 1) protect the privacy of your personal information consistent with this Privacy Policy, and 2) not use or disclose your personal information for any purpose other than providing us and/or our end users with products and services.

Legal Requirements

We may release your personal information to third parties: (1) to comply with legal requirements such as a law, regulation, search warrant, subpoena or court order; or (2) in special cases, such as a physical threat to you or others. In the event that we are legally compelled to disclose your personal information to a third party, we will attempt to give you prior notice unless doing so would violate the law or court order, so that you can contest the disclosure.

Changes to our Privacy Policy

If our information practices materially change at some time in the future, we will contact you if you have provided us your email address and it is still on record and/or post such change to the website. We will, however, always use information in accordance with the version of the Privacy Policy under which it was originally collected. If you are concerned about how your information is used, please periodically check our website, especially this privacy policy.

Contact Us

If you have specific questions or concerns about PDF's Privacy Policy, please contact us at the following address:
        Parkinson's Disease Foundation (PDF)
        1359 Broadway, Suite 1509
        New York, NY 10018


Last revised September 14, 2004.